Saturday 20 October 2012

Cancer Scare & Happy Endings


I feel like I haven’t been doing too much since my last post. I guess working full time will do that to you.

AJ and I spent a great thanksgiving weekend with some family and friends. The Friday night we went to see the new Mormon temple in town (yep that’s our Friday night) with our friends. I learned a lot about the religion and it was great to see a beautiful temple. Once the ‘open house’ period is done at the temple the public is never allowed in again. I’m really glad we got to go and experience something that could really be once in a lifetime. Unfortunately we were a little underdressed….wearing jeans and yoga pants while everyone else wearing dress clothes was slightly embarrassing. Saturday night we had dinner at my Mom’s house (yum!!) and Sunday dinner at a friend’s. Great weekend, nice and relaxing.

I finally saw my surgeon on Thursday for an expansion. I was supposed to go last week but they pushed me back, so it ended up being 3 weeks in between expansions instead of 2. I thought this visit was going to be normal but I will get back into that in a sec. So I have finally reached my size I think. 550ml in each expander. It’s not very comfortable right now but I think this is the closest to my natural size and what I will be happiest with.

Left                          Right

 
180ml                    120ml < Time of surgery

240ml                    180ml < additional 60ml at first check up

300ml                    270ml < Additional 60ml in left and 90ml in the right

360ml                    360ml < Additional 60ml in the left and 90ml in the right
 
450ml                    450ml <additional 90ml in both

550 ml                   550 ml   < additional 100ml in both

I will have one more expansion to make the skin and tissue more pliable for the permanent implants. After that I guess it’s a waiting game until January for my replacement surgery.

So back to the scare…I have been having some pain in the lower right abdomen area. I assumed it was muscle pain (my back has been healing and getting tighter) but it has been lingering for 2 weeks. Anyone that has been through cancer knows that if it hurts after 2 weeks – see a doctor. I decided I should tell my surgeon. She felt around my stomach and right below my ribs stopped and asked if it hurt. I said no so she asked me are you a big drinker? Anyone that knows me knows I don’t drink anything. I knew right away she was asking me about my liver. For anyone that is wondering why we would worry about my liver it’s because breast cancer can metastasize to 4 places usually. Brain, lungs, bones and liver. She then explained that she could feel it and in most people you can’t. She wanted to do blood work, chest x-ray and ultrasound ASAP. My heart sunk. I felt like there is no way this is happening again. I have taken my medication every day religiously and went through all the precautionary steps. I was terrified – I know that metastatic breast cancer means treatment to extend the quality of life not the length of your life. I am not ready. I have so many plans and so many years to live, this was not ok. So she had her reception set up a time for x-ray and ultrasound – the next morning. She said that she didn’t think it was anything but muscle pain but because she was a cancer doctor and my liver was bigger than a normal person it needed to be looked into. I have been told before by doctors that it wasn’t anything and not to worry…

AJ and I went to have my blood work done right away. The labs at the hospital are amazing and I highly recommend if anyone needs blood work – go there. When we got there they didn’t have one person waiting. It was great. On the requisition she had hepatitis checked off – at this point I was praying that’s what it was. That night we went to my Mom’s for dinner and to hang out. It was pretty emotional for me. I was going through a lot of emotions like I’m not ready to die and I just want the chance to be a Mom. These are things most people my age take for granted. I don’t. I cherish what my future holds and I want it so badly.

Anyways the next morning (after not sleeping at all) we headed to the ultrasound/x-ray place. I was pretty emotional because this could be the start of a downhill slide. I was lying on the table while the sonographer looked at my abdomen and I started crying. I was so nervous and I knew I had to wait all weekend (it was a Friday) before I would know.  The girl that was doing my ultrasound felt bad for me I think and we had been having good conversations about fertility etc. She said “at this point, unofficially, I don’t see anything bad in your liver.” Finally I could take a little breath of relief. It didn’t mean it was all ok but it good to hear. She finished up and said I am going to talk to the doctor that looks at the pictures and see if he can come in and give you the results so you don’t have to be a ball of nerves all weekend. This was exactly what I needed. Thank goodness I got an amazing person doing my testing. The doctor came in 10 minutes later and said all was clear. He saw nothing on my ultrasound of concern. I started crying (again) and said thank you so much. I had been so worried and anxious that when he said it all I could do was cry happy tears.

 I felt like I was given permission to live again. That sounds silly but when my doctor said your liver is big all I could think was I should stop making plans, I might have to go off work again etc. I felt like everything had to go on hold until I had my results. Now that I had some of them I could continue on with my life and my plans. I realize that I didn’t have my chest x-rays and blood work but I felt like the most dangerous thing was out of the way.

While at work today AJ got a call from my surgeon saying everything was great. My blood work, x-rays and ultrasound were all normal. Woo hoo!! Load off my shoulders. Like I said in my previous paragraph, permission to resume regular life. I thought it was pretty nice that my surgeon called my house on a Saturday, most people can’t even get a phone call for good blood work results from their family doctor on a weekday. Seriously – if anyone ever needs an oncologist/plastic surgeon let me know. She is great at what she does and amazing bed side manner.

Anyways after my first real scare since my initial diagnoses I’m feeling pretty upbeat and positive. I think we are going to have a yummy pizza tonight and celebrate. I just want to say one thing (I’m sure I say it all the time). Enjoy your life and your blessings. I see so many people complaining about their children or why they have it bad – and it might be a tough day but the blessings you have are amazing. Think, one day you could go in for an ultrasound and it could all change….

Tuesday 2 October 2012

Busy Busy! Work and Breast cancer events!

I can’t believe it has been 4ish weeks since my last post. Time flies when your having fun I guess! The hubby and I have been talking about this a lot lately – how quickly time passes by. For example today I am 8 weeks out of surgery (!!!), have been out of treatment for 9 months and Christmas is only 2 and a bit months away. Seriously. Make sure you take the time to enjoy all of lifes experiences because before you know it they are gone!

Anywho…I have seen my surgeon twice since the last post. I have almost half a litre in each of my expanders now and I still haven’t decided what size I want to be. It’s really hard to decide! You would think it would be easy and all you would have to say is “B-cup” or “C-cup” but we have learned it doesn’t really work like that. It depends on your body and frame and you have to decide on the what volume you like the look of not what they actually look like (at this point). They don’t look the same at all for now and we can’t decide if this is the right amount of fluid or not. I guess I will do one more fill and see how I feel. So this is where I stand now…

Left                  Right

180ml               120ml   < Time of surgery

240ml               180ml   < additional 60ml at first check up

300ml               270ml   < Additional 60ml in left and 90ml in the right

360ml               360ml   < Additional 60ml in the left and 90ml in the right

450ml               450ml    <additional 90ml in both

As you can see I now sit at 450ml in each. It’s quite a lot of fluid. My tissue expanders are only made to hold 550ml total. Apparently though she goes over quite frequently and it doesn’t harm them…

At one of these appointments she let me know that they had booked my surgery for November 23rd. They don’t waste anytime at all. I asked her though to post-pone my next surgery until January. That way I will be eligible to collect EI again. On a good note the seroma I had a few weeks ago seems to have disappeared and fixed itself! I am really happy it went away…it was getting kind of annoying at times.

The CIBC Run for the Cure has a survivor’s parade every year at Banker’s Hall downtown. It is kind of a kick off for the run that takes place a couple weeks after and an event to bring awareness to the event. I didn’t go last year probably because of chemo and I wasn’t going to miss this year. It was so much fun! I hung out with some of my bc friends and met some new people. I really enjoy spending time with other survivors…it’s like it’s own little club and I am proud to be part of it. We frequently talk about how we are feeling, who is seeing what doctor and all the funny things that go along with lopsided breasts. It’s nice having the time to talk to people that don’t get sick of the topic!

This parade probably had about 200 – 300 survivors at it. AMAZING!!! There was one man in the mix, which was great because a lot of people don’t realize that men can get this disease also. So everyone gets to the event, registers, gets their white cowboy hat and pink t-shirt. Then they get in a line depending on how many years they have been a survivor. I was in the 0 – 5 group and they went all the way to 15+. After everyone is ready to go, we went down the escalator and stood in a large group in the middle of the foyer. We had a few famous guests that were there to speak and brought lots of tears so everyone involved and the people watching. Afterwards we filed outside onto Stephens avenue for a mini parade. It was a great time and I can’t wait to be part of it next year.

One more (exciting) thing that happened at the parade was the Pink Ribbon Pin-Up Calendar was released. They ended up changing me to January and it looks so great! All the ladies look gorgeous and it really is a great way to raise money and bring some awareness to the scars, women’s stories and life after. Make sure to buy yours before the end of December at Safeway stores across the country!



So the day after it was time to go back to work. I have now been back for a couple weeks and it’s been pretty good. I am still fighting some fatigue and nervous about pushing my body physically as I don’t know what I can handle. Thankfully I work with some great women that are super understanding and helping me lift bags and hold animals that I don’t feel confident doing so with. Thanks ladies!

This past Sunday was the CIBC Run for the Cure. The bald picture of me on my blog profile was taken last year at the same event. It is so much fun and anyone can participate because it is only 5km. I started getting ready for this the Wednesday before. I put some little pink caps on Kali’s nails – she didn’t mind them but AJ wasn’t too impressed. That night also happened to be PALS night at the Children’s…the kids LOVED her nails. So at 7am on Sunday a bunch of us met down at Southcentre to get ready for the walk. We had wigs, tattoos, necklaces, balloons and some beautiful jackets for all the dogs (8 of them) that my Mom made herself. People were taking pictures of the dogs left right and center. I have to admit they looked pretty cute! Thanks again to all my friends and family that came out and walked with us. Next year we will plan it a bit sooner and hopefully recruit more people and have some t-shirts made!